Name: One in Thousands: - my life as a rarity (en Inglés)
SKU: 56849134
Price: 656.59 MXN
Availability: InStock
Author: Barrett, Dorrit
ISBN: 9788743030768

portada One in Thousands: - my life as a rarity (en Inglés)

One in Thousands: - my life as a rarity (en Inglés)

Formato

Libro Físico

Autor

Dorrit Barrett

Editorial

Books on Demand

Idioma

Inglés

N° páginas

206

Encuadernación

Tapa Blanda

Dimensiones

20.3x12.7x1.2 cm

Peso

0.23 kg.

ISBN13

9788743030768

Categorías

Memorias

One in Thousands: - my life as a rarity (en Inglés)

Dorrit Barrett (Autor) · Books on Demand · Tapa Blanda

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Reseña del libro "One in Thousands: - my life as a rarity (en Inglés)"

Ehlers-Danlos Syndrome is probably the most overlooked physical handicap in the world. A genetic hiccup changes your body completely, and as you look "normal", nobody understands why you can't BE normal. Not even your doctor, who may have forgotten all she ever heard about the rare syndrome. The author has fought for a "normal" life for 77 years. It didn't become normal, but both interesting and meaningful in spite of her invisible enemies: Her own shame of not being like everybody else, and an environment - including the medical world - that was convinced her problems "were all in her head". Her kind of EDS, the classic, only appears in 1 in 20.000 people. Some believe as few as 1 in 40.000. Other variations - there are 13 in all - are far more common. You may have heard of people who suffer from one of them. You may even know one.