Name: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (en Inglés)
SKU: 56345572
Price: 1491.53 MXN
Availability: InStock
Author: National Academies of Sciences Engineeri ; Health and Medicine Division ; Board on Population Health and Public He
ISBN: 9780309669603

portada Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (en Inglés)

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (en Inglés)

Formato

Libro Físico

Autor

National Academies of Sciences Engineeri

Health and Medicine Division

Board on Population Health and Public He

Editorial

National Academies Press

Idioma

Inglés

N° páginas

522

Encuadernación

Tapa Blanda

Dimensiones

22.1x15.7x3.3 cm

Peso

0.84 kg.

ISBN13

9780309669603

Categorías

Investigación médica
Enfermedades y trastornos

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (en Inglés)

National Academies of Sciences Engineeri (Autor) · Health and Medicine Division (Autor) · Board on Population Health and Public He (Autor) · National Academies Press · Tapa Blanda

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Reseña del libro "Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (en Inglés)"

Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.