Rare Diseases: Research and Support for Individuals with Rare and Often Neglected Medical Conditions (en Inglés)

Joseph, Emmanuel · Blurb

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Reseña del libro

"Rare Diseases: Journeys of Hope, Resilience, and Progress" is an illuminating and comprehensive exploration of the world of rare diseases. Within its pages, readers will embark on a profound journey that delves into the unique challenges faced by individuals and families affected by these conditions. This book offers an in-depth look into the diverse and intricate landscape of rare diseases, shedding light on the triumphs, the challenges, and the incredible resilience of the human spirit. Rare diseases, often called orphan diseases, are a group of medical conditions that affect a relatively small number of individuals. These conditions are marked by their complexity, the uncertainty of diagnosis, and the scarcity of available treatments. Despite these obstacles, the rare disease community is united by hope and determination. In this book, readers will discover the remarkable stories of individuals who have faced the hurdles of rare diseases with courage, strength, and resilience.

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